Parenting Deaf and Hard of Hearing Kids: Choosing a Language (Part II)

This series is designed to help parents manage specific aspects of bringing up a child with a different learning path. The next few months we’ll be focusing on parents of deaf and hard of hearing kids. This article follows a previous article here.  Last time we spoke about deaf kids was here: Diagnosis, Keeping Devices on Kids, Sports and Activities.

Part I focussed on the importance of early language acquisition and briefly reviewed different methods. This article will draw on the experience of three people with different perspectives, to give you more informal insight.

We were very lucky to have input from three experts and parents. Phoebe Tay is a Deaf teacher from Singapore. She speaks of her journey growing up oral in a predominantly hearing society to discovering the Deaf community, where she learned about Deaf culture and Deaf identity. Toshiko Clausen-Yan shares experience as a hearing mother to a multilingual oral son. We also spoke to Joyce Lew, a speech-language therapist and certified auditory-verbal therapist who migrated from teaching using the auditory-oral method to concentrating on auditory-verbal.

A Speech-Language and Auditory-Verbal Therapist on Oral Methods: Joyce Lew’s Experience

Joyce started her career in Singapore at a time when screening tests were rarer, and kids came into her office quite late. “They had already learned how to get by with lip-reading and mostly came from hearing families”, she recalls. Their families didn’t really have the time to learn a whole new language (like signing) to be able to stimulate them soon enough. “Parents were really just desperate to connect with their kids. They wanted activities to do that would teach their kids language, now.”

Joyce initially focussed on auditory-oral methods. “But research [at the time] suggested that if we continued teaching kids language through lip-reading, they would likely plateau in language acquisition because we read and spell based on how words sound.” So she decided to test auditory-verbal methods in her work.

At first, it was difficult for children to accept to learn relying only on their residual hearing. “It felt extremely unnatural at first,” she says “we had to think of all kinds of ideas to bring the focus away from the lips. But within a few months, there were moments of automatic listening and verbal responding while the kids were busy with their heads down in play.”

In some cases, residual hearing can be used to access language.

A few years later, as newborn screening became mainstream and more and more hard of hearing babies arrived with hearing devices, auditory-verbal became a norm. She says “some of the reasons are associated with the relative ease that babies experience in getting used to hearing devices and in learning how to listen without first learning how to lip-read.”

After a decade in her field, Joyce is convinced communication is key to developing language. And that parents tend to communicate more with their child if they are comfortable with the chosen language.

From Oral to Signing and Deaf Culture: Phoebe Tay’s Journey

 

Phoebe’s life changed when she started to use both English and Auslan

Phoebe was born deaf and diagnosed around three and half years old. At the time in Singapore, oral methods seemed to be the only option. Moreover, spoken and written English were expected to be understood by everyone. With the use of hearing aids and residual hearing, Phoebe was able to pick up English. She fared well enough in school and her language skills “started to bloom from upper primary onwards.”

 

Yet communicating wasn’t always easy. “It was okay to communicate in one to one setting”, she says “but classroom and group settings were tough.” Phoebe points out that language development is not just linked to academia, but also to social development. She felt like she couldn’t quite fit into the hearing world. Almost like language was a barrier.

Then she went to Australia, where she learned Australian Sign Language (Auslan). She suddenly discovered a language she could acquire, as well as a whole new culture. “I started to feel more confident, and signing helped me get a better sense of self-esteem.” Realising that she could use both Auslan and English changed her life.

There’s growing evidence that being part of a Deaf community and developing a Deaf identity helps build a child’s resilience. For Phoebe, this effect was palpable even as an adult. “I use aids, but they have their limitations. And they don’t make me a hearing person.” At the end of the day, “some kids will fail at oral methods no matter how hard they try because they simply can’t hear enough”. They still deserve to have a language they can succeed in naturally.

When Cochlear Implants Are Combined with Auditory-Verbal Therapy: A Mother’s Modern Tale

Toshiko’s second son was born profoundly deaf. Her family chose to give him the most mainstream life possible. This was possible according to doctors, who recommended cochlear implants at a very early age: only seven months old! Despite their natural fears regarding invasive surgery and the high cost, they chose this option.

Of course, this meant many years of intense speech therapy. “As soon as he had his cochlear implant, he got the same exposure to language as a hearing child,” she says. Sometimes it can be hard to get children that young to focus on tasks (like speech therapy) and keeping their devices in place, “but you have to keep in mind the long-term goals.”  Over time, her son has been able to learn several languages, including English, Mandarin, Japanese and Norwegian in natural settings.

Implants are getting more and more sophisticated and invisible.

For Toshiko’s son, the implants worked so well he can hear very minute sounds. “The advancement of technology has made this possible and we embrace all advancement that makes life simpler and better,” she says. In fact, he can now pick up calls directly to his implants, which he thinks is pretty neat.

She has a few words of encouragement to parents of children born deaf: surround yourself with people who are supportive and positive. “I did not allow people to cry or feel sad for him in front of him,” she remarks. “Stay positive, and keep your child feeling positive.”

As a brief conclusion

We hope these three testimonials will help you with parenting your child. Remember: each family is different. We hope yours will thrive!

Additional Links

Looking for some of our sources? We used some of these links. Send us more by commenting below!

Disclaimer: these blog posts are intended as exploratory articles for parents of recently diagnosed children. They do not constitute medical advice and cannot replace a medical opinion.

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Sports for Kids with Hearing Loss: Keys to Success

This series is designed to help parents manage specific aspects of bringing up a child with a different learning path. This month we’ll be looking at what parents and specialists have to say on raising children who are deaf or are hard-of-hearing. The previous article in this series can be found here.

“Deaf kids can do anything but hear well”

But apparently some with aided hearing do hear amazingly more than a regular hearing person. But we digress. When we asked Bianca Birdsey, a medical doctor and mother to deaf twins, about extracurricular activities she immediately enumerated her kid’s hobbies. Her children really can do anything: from karate to dancing, including team sports, they are busy!

Duck-hee Lee is an South Korean Teenage tennis sensation

Duck-hee Lee is a deaf South Korean Teenage tennis sensation

Tips for helping kids do sport fall under two main categories. On the one hand, adapting social behaviour and communication patterns, and on the other, finding equipment and technical adjustments. Furthermore, “the challenge is more around socialising,” says Bianca, “especially if people see implants or aids and assume they won’t need to accommodate.”

Adjusting to Deaf or Hard of Hearing Team Members

Listening to Bianca talk about her experience, it seems that many of the adjustments are minor. For example, Bianca explains to coaches that her children will need more eye contact, and lips should not be hidden. These adjustments meet the child halfway, as she learns how to adapt too. As a result, her kids have developed “special powers”, and she marvels at how they can now lip read backwards in a mirror during ballet class.

Tamika Catchings was the star player of the Indiana Fever WNBA team and an Olympic gold medalist. Image courtesy of lovewomensbasketball.com

Tamika Catchings was the star player of the Indiana Fever WNBA team and an Olympic gold medalist.

A good way to make the sports environment more inclusive is to teach coaches, teachers and fellow team members a few words in sign language. Involving the team, by giving them 10 new signs is a great way for them to bond. What’s more, we suspect being able to sign a little might even give them an edge over competitors if they want to share secret information during a match!

Use these Adjustments to teach your Child to Advocate for Themselves

Bianca is very aware that her children will need to learn to advocate for themselves in the future. “What’s important for me is their confidence,” she says, “and I want to model how to advocate in a nice, calm way.” In this respect, a sports environment is a great place for children with hearing loss to realise that asking for accommodations is normal.

In rare instances where coaches put up resistance, Bianca wants her children to see that they are worth fighting for. More than just sports, her children need to know “they are loved unconditionally,” and should not take no for an answer when it comes to their social needs.

Equipment and Technical Adaptations

In some cases, technical gear might be required. Swimming comes to mind, as kids with implants might have a difficult time keeping them dry. Solutions do exist, like the ListenLid Swim Cap, so these children can develop their full athletic potential. In other sports, bigger helmets might be the answer, as well as headbands to hold aids and implants in place. We even saw some creative braiding while surfing for ideas, by the mother of a very athletic teenager.

Terrence Parkin is a deaf olympian swimmer

Terrence Parkin is a deaf Olympic medal winning swimmer

Sometimes technical adaptations are easy for schools and training centres. For example, the dance school Bianca’s children attend turns the base to the floor so they can feel the beats. We bet the experience is also enriching for the hearing kids, who are getting a different approach to dancing.

All Worth the Effort…

Most of all, Bianca is really proud of her dancing deaf children. “They absolutely love their dance concerts, they seem confident and happy. And they have the biggest smiles!” she says. Which goes to show deaf children really can – and should – do anything.

Additional Links

Some additional links for parents looking for more information. Please also suggest more to us, which we can add to the list.

 Final Takeaway

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Photo credits: Duck-hee Lee (L’Equipe), Tamika Catchings (lovewomensbasketball.com), Terrence Parkin (Michael Steele/Allsport/Getty)

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Playing with Children on the Spectrum: Developing Faculties and Playtime

This series is designed to help parents manage specific aspects of bringing up a child with a different learning path. This month we’ll be looking at what parents and specialists have to say on raising children on the autism spectrum. Previously we wrote about the diagnosis stage here and helping parents here.

All parents know that play is fundamental in a child’s development, be they neuro-typical or facing specific challenges. But playtime is also a unique moment to interact with your child and create bonds. We spoke to Delia Yeo, a speech and language therapist, and Ladislas de Toldi, co-founder of Leka, to know more about how play can help children on the autism spectrum develop skills and bond.

Playing and Engaging with People

Games stimulate and motivate children, through fun and the desire to win. Yet both experts stress that children on the spectrum often have difficulty engaging with playmates, remembering  rules or using all the concepts necessary to win.

Therapists like Delia “look at several aspects of how the child plays to understand how he or she understands the world”. Like an alternative mapping, Delia is able to identify what types of play are easy, which ones are hard. She chooses specific types of games accordingly centred on internal feelings, external sensations, sitting, physical activity, etc.

In some cases, Delia has to teach a child to play before she can teach them skills through play. She starts with simpler games, ensuring she can interact and engage, before moving on to complex games. Most importantly, she has to look for what the child enjoys. “I choose the game depending on the child’s interest, [so] they [will] have a gleam in their eye and connect”.

Games and Technology

Traditional games like hide and seek, puzzles, swings or anything another child might play are used to help autistic children learn skills. Nowadays, thanks to technology, new games have emerged, some of which are more high-tech than anything a neuro-typical child will use.

Take Leka, for example, a small, round, ball shaped robot developed by a French start-up with specialists in several countries. The robot uses artificial intelligence and is designed to help children progress on their cognitive, motor, social and communications skills. Less intimidating than a human, the robot interacts directly with children, setting the rules and congratulating them when they succeed. They get a real sense of accomplishment when they are able to crack the game. Amongst other games, Leka plays hide and seek and Simon Says, and new games are added every week.

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Leka, the robot, happy face

“The most important thing”, says Ladislas “is figuring out what each child enjoys. It’s the only way to open the door. And if they only like Dreamworks animated movies, then so be it.” In fact, Leka are very humble in their approach. They advise parents and organisations consider all their options before investing in Leka, because at the end of the day, their objective is to make sure the robot is bringing out the best in children.

“There are so many incredible new ways of interacting with children on the spectrum now. I’m impressed by some apps on the iPad, that have non verbal children interacting with the world, and I’m stunned by how apps like Sidekicks are helping people with autism communicate with their families.” Children on the spectrum can greatly benefit from technological playthings, which unlock new opportunities to learn and communicate.

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A child plays with Leka the robot

Is All Play Work Disguised as Fun?

Delia recommends that “parents should always play without a teaching goal in mind”. The tendency to test their child might take all the fun out of playing. Just the act of spending quality time together and fostering engagement is valuable. As they play together, the child will learn some things naturally from them, in a softer, less goal oriented way.

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Family play time, in this case with Leka the robot

“My advice is to simply follow your child’s lead. Join and imitate her at first, and as your play grows, her ideas will grow too. You’ll be “teaching” by supporting her experience in play”. As you do so, Delia suggests introducing your ideas and small challenges into games. They will encourage your child to problem solve around them, or create unity in a scattered game.

Delia recalls an autistic teen who was brought up with very little play. “He was very compliant and would carry out tasks, but seemed robotic and detached.” Recently, as she has worked around discovering what he likes and doesn’t like, and developing his ideas through play, she has seen the teen grow in confidence and become a real playmate. “He used to interact because he was supposed to, not because he wanted to. Now he’s pulling his weight in our interaction!”

Happy playtime!

Additional Links

Some additional links for parents looking for more information. Please also suggest more to us, which we can add to the list.

  • For more about Leka you can also visit here. Leka is currently looking for financial partners. Contact Ladislas at ladislas@leka.io for any inquiries,
  • An example of a sidekick app,
  • A review of Ron Suskind’s book on using Disney sidekicks at home to communicate with their son Owen,
  • Link to the film about using Disney sidekicks. 
  • Autism Speaks has a very long list of apps here

Note: all photos in this article are curtesy of Leka

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Diagnosing Hearing Loss in Children

This series is designed to help parents manage specific aspects of bringing up a child with a different learning path. This month we’ll be looking at what parents and specialists have to say on raising children who are deaf or are hard-of-hearing. The following article on hearing loss and sports can be found here.

Studies show that over nine out of ten deaf and hard of hearing children are born to hearing parents. This makes identifying hearing loss and adapting very difficult for families. We spoke to two mothers of deaf children who are happy to share some advice.

The Silent Handicap

Hearing loss is invisible. Many children can go years without ever being diagnosed. Bianca Birdsey, medical doctor and mother to deaf twins, recalls being politely hushed when she expressed her concerns. When she noticed oddities in her children, “people would say “it’s their normal!“”  she recalls. “They would think I was paranoid because I worked in paediatrics.” Bianca even asked a day care teacher if they noticed anything unusual about the twins, “and at the end of the day, she said “there’s nothing wrong with them”!

It took a dramatic scene in a public setting, with one twin crying for her mother, who was standing a few feet behind her, for Bianca and her husband to confirm their intuition: the girls just couldn’t hear. Stories like these are apparently quite frequent in South Africa. Bianca says many children there aren’t diagnosed until as late as five or even later.

Of course, diagnosis can differ greatly from one country to another. Tara Teo, founder of Irisada, gave birth to her daughter in Norway, where children are automatically screened. However, after the first check the nurses told them to come back two weeks later, as there might simply be “water in the ears.” The next test was also inconclusive, mainly because her daughter was too agitated to get good readings. It took an additional two months to finally get consistent readings of one ear and discover Heidi was profoundly deaf.

The Language Barrier

Why is an early diagnosis so important? The first two reasons are linked to how the human brain develops at that early age. Firstly, the early months and years of a child’s life are those where the brain learns how to structure language.  If they are diagnosed too late, they may have missed this critical phase and be left with learning difficulties.

Why? Because deaf children can only access language via visual aides until they are taught sign language or have hearing devices (if their family chooses to). Most families don’t sign at home unless there is already a deaf family member. This means that until a child is diagnosed, they often have absolutely no means of communicating and structuring thought with others.

The second very important factor, is that a child’s brains learns early on how to differentiate frequencies, especially to pick out human voices from other sounds. Tara’s daughter was given hearing aids and cochlear implants at a young age, but she needed lots of additional speech therapy to learn what to listen to in a sound. She’s also working hard to reproduce speech sounds, as she wasn’t exposed to them as early on in the belly as other babies.

Follow Your Child’s Lead

Both parents stress the amount of pressure they were under. “You’re making all these decisions for them” says Bianca, and some people have very set opinions on what is best for deaf children. Some of these decisions can be expensive in many countries, which can make it even harder. There can also be an impression that once your child has aids or implants, things will just miraculously get easier. In fact, the operation or “switch-on” is often just the beginning.

The mothers both laughed when they recalled their children’s reactions as the implants were turned on: pure horror! Bianca even jokes that there’s no point spending hours thinking up the first sentence you’ll speak to your child, as they won’t have a clue what the sounds mean! Imagine coming from a world of silence into a world of continuous noise. A great deal of energy goes into adapting to hearing.

Mothers with a Mission

Bianca’s advice is to “trust yourself”. Don’t let yourself get caught up in the politics around deafness, just follow your child’s lead. “There’s no right or wrong choice”, she says “as long as your child is progressing”. In Bianca’s case, meeting and socialising with deaf adults broke the spiral of grief. In part because she came to terms with a realigned vision for her twins’ future, and also because she was able to master sign language faster. Learning to sign, as a family, allowed them to bond like they never had before.

Tara, meanwhile, was frustrated with how difficult it was to get adapted headbands for her daughter as Heidi’s ears were simply too small to keep the devices in place. She spent hours online, searching for something that would keep the implants in place. She realised there was a gap in the market, and how useful it would be to be able to provide a small solution that could have a potentially huge impact. She felt how wonderful it would be if parents free up time they were spending sussing out where to find special products, to spend with their children instead. With this conviction and simple goal in mind, she founded Irisada, the very platform you’re reading on now.

Additional Links

Some additional links for parents looking for more information. Please also suggest more to us, which we can add to the list.

  • Facts about hearing loss
  • Bianca’s blog, on her experience of bringing up three kids with hearing loss
  • A preliminary list of famous deaf people, to get you started with imagining your child’s future
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HOW TO USE THE RIGHT PUZZLES FOR YOUR HOME THERAPY NEEDS (PART 2)

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In our previous article, we talked about the benefits of puzzles and the types of puzzles to choose from. Now let’s be practical and talk about how to teach concepts with them!

HOW TO TEACH?

How do we teach a child how to solve a puzzle? We went through some speech therapists, occupational therapist, homeschooling and Montessori style articles and extracted some ideas. We’ll also be referencing back to the same article in  HubPages.

Non-connecting puzzles with just 2 – 4 pieces are good for kids at a developmental milestone or age of 0 to 24 months. The ones with big pegs are good for gripping for players with not so good fine motors skills, so the child can focus on the matching activity without getting too discouraged.

It is recommended to progress to puzzles with more pieces after they have mastered the smaller ones. When first working on bigger puzzles, present a few pieces at a time. Let them play with those pieces and figure out the pictures first before attempting to match.

For alphabet or number puzzles, it is also a chance to work on letter or number recognition and speech (sounds of consonants and vowels). Separate the pieces by rows and present them one row at a time.

Connecting puzzles  are more complex and can feel like a leap from their non- connecting counterparts. They require far more advanced perceptual skills. Most of them do not have reference pictures and therefore require the child to either work on memory or on logic, which they clearly have not fully developed yet. A tip that Rose Mary shared was to trace the pieces on the board or keep a notebook of pictures of the finished puzzles. Heidi Song suggests writing the numbers behind each piece and on the board itself. How simple and smart these suggestions are!

Interconnecting puzzles are typically jigsaw puzzles. If your child does not have the focus for a bigger puzzle or you do not have enough time, simply get your child to work on small sections of the puzzle at a time.

OT mom here has 2 methods of working with puzzles. One is to work on the borders first. The other is to group similar pieces together like what Rose Mary did here.

With jigsaw puzzles, you might have to spend a fair amount of time setting up. Make sure all puzzles pieces are faced up before starting the game with your child. This will help children with limited patience who may lose interest if parents take too long setting up. Another method is to involve them in the set up by getting them to help flip over the pieces that are facing down.

It is also useful to note that, before starting a puzzle, it is good to lay down some rules so that children can benefit from the session. For jigsaw, we should encourage children to take a good look at the completed puzzle before taking the puzzle apart. We should also remind the child to work on  one puzzle first before moving to the next to avoid distraction or getting  pieces mixed up.

 

WHAT ELSE TO THINK ABOUT?

A Special Purposed Life, a pediatric speech therapist blogger, walks us through what to think about when buying puzzles. Depending on their stage of development, one can choose puzzles based on the speech goals we want to achieve for them.

For instance, if your child is working on single words, use puzzles that have animals, vehicles, fruits and so on and work on words like animals sounds (‘moo’ for cows, ‘baa’ for sheep, ‘beep-beep’ for cars, etc). Every time they respond to the sound, be it mimic or mouth the word, reward them with the piece and guide them to put it in the right location. Other words they can learn are verbs and preposition such as ‘go’, ‘move’, ‘in’, ‘put’, etc. (We will, in future, include a list of sounds you can make for each type of object.)

If they are working on two words or more, you can say things like ‘I want dog’ or ‘I want the dog’, ‘Find the truck’, etc. You can even find puzzles to teach colours and sentence structure at the same time by saying ‘I want red bear’, ‘I want blue bear’, etc

Are they working on a particular consonant sound such as /b/, /p/? You can use alphabet puzzles to work on these sounds by applying the same technique as used for the animal puzzle. Or you can reuse the transportation puzzle, by presenting a boat for the /p/ sound. This was what we learnt at AVT: say /p-p-p/ and when the child responds, present the boat. Let the child play with it for a while and get him or her to place it in. If the child does not respond, present the boat anyway after the third articulation. If using the alphabet puzzle, do not attempt all letters at one sitting.

It is important to note that puzzles with sounds might not be recommended for training speech as it can be distracting and the human voice is after all better than mechanical sounds. However, for the purpose of occupational therapy, it can be something fun and more attractive to a child with ASD, for instance.

Additional tips: for families who are bilingual, allocate one language to one parent. Play the same puzzles in the same manner but with both languages at separate sessions. This introduces variety so the child can familiarise herself or himself with concepts without getting bored. Also, the consistency helps the child be effectively bilingual as he or she has a good learning model for both languages. At the same time, the other parent can take a break (play can be exhausting for adults too!)

 

Check out these other articles for even more ’puzzling’ tips:

 

Check out these videos too:

 

Do visit our site for more exciting products. Our vendors are not big warehouses, but therapists or specialists in the field and are experts in selecting and curating products carefully and meaningfully. We work hard to bring to you as many great products as we can source from around the world so you can make the best choices for yourself.

If you found this post useful, kindly like us here, or sign up for our newsletter here.

Thank you.

Team Irisada

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Singtel Future Makers 2016

We are excited to share that we have been awarded by Singtel to be part of their Future Makers program. This is an incubation programme targeting social startups. It lasts for 6 months and aims to help businesses achieve robust business models by the end of the period.

Here is us with the giant cheque! We are looking forward to this journey ahead. Stay tuned as we share more of our journey throughout the incubation. Also, look out for our line-up of interesting stories ahead.

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A big hello!

Hello and Welcome to our blog! Here we will keep you updated on everything Irisada. Like the products we find exciting, stories we find interesting and the trials and tribulations of our journey from an idea, to a global marketplace connecting thousands of people and sellers.

So…. Who and what is Irisada?

Tara first came up with the idea after the birth of her daughter Heidi, who was born with hearing problems. In her own words:

The first diagnosis brought a lot of anxiety and confusion. I thought life would never be the same again.

That was true but not necessarily in a bad way. We were lucky in many ways and mostly because we live in this decade. There are many solutions and smart ideas except they are not always easily accessible. But they are out there. I found many different ideas and products to help in managing my child’s condition to meet the demands of our day-to-day activities. The search was not always easy, and I felt this had to be a problem for all parents and care-givers of people with special needs. Which is why I decided to create Irisada.”

Our vision is to create a place where worries are replaced with solutions from around the world. Life dealing with Special Needs is a somewhat different journey. Irisada means ‘iridescent’ which means luminous colours that change, depending on which angle you look. That is how we view the challenging but meaningful journey people dealing with disabilities face.

Irisada is a marketplace selling specialised products as well as a community of people sharing their stories and advice. There are a lot of unique solutions to daily living problems which are hard to find, and we hope to make it much simpler for you to be fully informed of your options. Through merging the global market into one place we also hope to improve the quality of the products via promotion of innovation through showing manufacturers not just the size of the market out there, but also the needs and opinions of the market.

Smaller businesses and sole traders are also important to us. We know how difficult it is to sell through general online marketplaces, which can be confusing and overcrowded. As a small seller, you can try your hardest and still only make it to page 10 on the mainstream marketplaces. One of our first initiatives is called “made by mums”, a special label dedicated to supporting mothers and their creations.

People’s experiences and stories of their life with disabilities are incredibly important. The scariest thing can be what you don’t know, like how your life will be affected in the future. The experiences of others give us information on how to deal with situations, comfort us when we are scared and show us how other people don’t just keep going but really live. Irisada has a space for everyone to share their stories and share in the lives of other people, which we hope you (whoever you are) will contribute to!

So there it is. Irisada. We hope this site helps you!

If you’d like to help us improve Irisada we really want to hear from you! Use the link below to fill in our survey and suggest ideas you’d like to see happen.

https://docs.google.com/forms/d/1aVLrkhF4ziHAOqYjiXFBwZexxA51KRO0bOGJZXtgh7A/viewform?usp=send_form

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